Links, Associations and Help Groups

Links, Associations and Help Groups

• The Colostomy Association advice and help group for colostomy and iliostomy patients: http://www.colostomyuk.org/
• The Ileostomy and Internal Pouch Association: http://www.iasupport.org/regions
• The Colostomy UK Association: http://www.colostomyuk.org/support-groups/
• Crohn’s and Colitis UK: Support group for patients with Crohn’s and Ulcerative colitis Website: www.crohnsandcolitis.org.uk
• The Bladder & Bowel Community Forum https://www.bladderandbowel.org/
• Download a bowel diary sheet: bowel diary 
• IBS Network Website: http://www.ibsnetwork.org.uk
• National Association for Colitis and Crohn’s Disease Website: http://www.nacc.org.uk
• Living with a Stoma Website: http://living-with-a-stoma.co.uk
• Royal Association for Disability and Rehabilitation (RADAR) Website: www.radar.org.uk
  (Providers of toilet access keys)
• Colostomy Association Website: http://www.colostomyassociation.org.uk
• IA (The Ileostomy and Internal Pouch Support Group) Website: www.the-ia.org.uk
• Crohn’s Org UK  Website: www.crohns.org.uk
• Bowel Cancer UK Website: www.bowelcanceruk.org.uk
• Inside Out  Inside Out Stoma Support Group, Website: www.iossg.org.uk

USA

• The International Association for Medical Assistance to Travellers (IAMAT) at 716-754-4883 or www.iamat.org publishes lists of English speaking doctors who were trained in North America or Europe and are available in many countries around the world.Wound, Ostomy and Continence Nurses Society (WOCN)Toll-free number: 1-888-224-9626 Website: www.wocn.org
• United Ostomy Associations of America, Inc. (UOAA) Toll-free number: 1-800-826-0826Website: www.ostomy.org
• International Ostomy Association (IOA) Website: www.ostomyinternational.org
• ConvaTec Great Comebacks Community  A non-profit organization that accepts donations of unused ostomy products and provides products to uninsured people for the cost of shipping and handling.  Website: https://www.convatec.com/ostomy/meplus-community/
• American Cancer Society. https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/ostomies/stomas-or-ostomies/getting-help-info-and-support.html
• Ileostomy and Internal Pouch Association USA

Stoma Care Advice

Coloplast

• https://www.coloplast.co.uk/stoma/people-with-a-stoma/
• https://www.coloplast.co.uk/global/ostomy/ostomy-self-assessment-tools/arc/apply/?section=How-to-measure-and-cut-your-ostomy-appliance_366670
• https://www.coloplast.co.uk/global/Ostomy/ostomy-self-assessment-tools/arc/apply/#section=How-to-put-on-your-ostomy-appliance_366671
• https://www.coloplast.co.uk/global/Ostomy/ostomy-self-assessment-tools/arc/apply/#
• https://www.coloplast.co.uk/global/ostomy/ostomy-self-assessment-tools/arc/remove/?section=Removal-technique-for-1-piece-stoma-bag_367421
• https://www.coloplast.co.uk/global/ostomy/ostomy-self-assessment-tools/arc/remove/?section=How-to-use-the-Brava%c2%ae-Adhesive-Remover-spray_367450

Convatec

• https://www.convatec.co.uk/stoma-care
• https://www.convatec.com/products/ostomy-accessories/diamonds-gelling-and-odor-control-sachets

Stoma Products and Equipment

Stoma Bags and supplies

• https://www.coloplast.co.uk/products/stoma-bags-and-supporting-products/
• https://www.salts.co.uk/en-gb/products
• https://www.pelicanhealthcare.co.uk/product-category/ileostomy/
• https://wellandmedical.com/
• http://www.dansac.com/en-gb
• http://www.hollister.co.uk/en-gb/products/ostomy-care-products

• https://www.pelicanhealthcare.co.uk/product/deo-mint-deodorant/

Advice and information

• Pelvic floor exercises Information on pelvic floor exercises to help incontinence
• Bowel obstruction Information on bowel obstruction
• Diarrhoea Information on diarrhoea

Cook Books for the sensitive gut:

• Cooking for the sensitive gut £16.99
• The Royal Marsden Cancer Care Cookbook £19.99

Food Supplements

https://www.nhs.uk/news/food-and-diet/supplements-who-needs-them-a-special-report/
https://www.efsa.europa.eu/en/topics/topic/food-supplements

• Fortisip Nutricia Ltd: Fortisip it’s a high energy, nutritionally complete supplement.  A food for special medical purposes for the dietary management of disease related malnutrition.  Gluten and lactose free, fibre free. https://www.fortisipdrink.co.uk/ http://www.nutricia.ie/products/view/fortisip#  

• Ensure Plus Abbott Laboratories: for the dietary management of patients with or at risk of developing disease related malnutrition.  This product is suitable as a sole or supplemental source of nutrition to be used under medical supervision.  Gluten free. https://abbottnutrition.com/ensure-plus

Disclaimer: The views expressed in this article are not necessarily those of myIleostomy.com or the author. The information is provided for general background reading only and should not be relied upon for treatment. Advice should always be taken from your own registered medical practitioner for individual circumstances and for treatment of any patient in any circumstances.  No liability is accepted by myIleostomy.com or the author in respect to the information provided for any reason or as a result of treatment in individual circumstances.